Scoliosis

Hello again,

I would like to start by saying I have read Sandi Toksvig’s book!!! First book of the year, done. For my next book I’m thinking Kevin Hart? However, why are books more expensive on Audible than on Apple Books? I’m confused by this.

Anyway, this weeks post I’ll be writing about Scoliosis. Yes, my back pain is back. To be fare it never really went away. I am more or less always in some form of pain. Be it back pain, knee pain, neck ache. Anything really. For well over a month it has been something I’ve been putting up with.

The problem is I’m constantly taking painkillers, but just the normal stuff you can get off the shelf. I have to be careful with what I take due to other health problems. Yesterday I went and bought Ibuprofen even though I shouldn’t take it. I’m OK to have it in small doses just not all the time. I have kidney disease as well as congenital heart disease. So when being prescribed anything doctors take a bit of time thinking.

I go to the physio and have a sports massage. I have been doing this once a month for the past few months. The guy is great, he understands how my back pain affects me. He gives me exercises and we agree that if I need pain killers, then I should take them. I need to be able to get to work. I’d much rather be up and about than laying in bed, staying in bed all day does nothing for your back. Even if you manage to shuffle around, or sit on the side of your bed, or even propped up with pillows. Your back needs support and pillows are a great answer. I own many pillows.

Besides a sport massage and physio I would say getting the right pillow is essential. You need to support your head. Mine is a feather pillow and I like how soft they are. But I also own a memory foam one and one of those polyester filled ones. I don’t know what’s in them, I just know I went to Dunelm and spent a lot of money renewing my pillows. I have a triangle one as well, I think they’re called pregnancy pillows.

If you have never been for a physio appointment before, here’s what they tend to do:
They ask you about what you do for a living, what that involves.
They’ll ask you if you do any exercise.
How many hours sleep do you get on average?
Where does it hurt?
How often does it hurt?
Can you describe the pain?
On a scale of 1-10 how much does it hurt, on a good day and bad day?
To give you an idea, a good day for me is a 7 out of 10.

They tend to use a little picture of a person to mark where your pain tends to be.

I think it’s important to be as open as possible. The word sometimes is used frequently when you have chronic pain. The reason being is that we don’t like to think it controls every area of our lives, but it does. Think realistically. Don’t try be positive. This is not a negative attitude, this is realistic. If you’re in pain, tell it like it is. Otherwise you might be missing out on some options they have for you.

I went a month ago and said all my back was hurting, my spine is in an S shape, so when you look at me from behind I tilt to one side. He went down the whole of my back and used his elbows. I didn’t even feel him doing that. I just know that when he’d done, I felt 10 times better. He said my back was full of knots and tension and that it was a good thing I told him all my back was hurting. I can’t wait til Monday. Again I will ask him to do all my back. I will feel so much better.

Back pain, or any form of chronic pain, should not be taken lightly. As well as dealing with the physical aspects of the pain, consider the effect it has on your mental health. Your well-being is all of you, not just the physical you.

You know your own body, if you don’t feel well, have a chat with someone. It’s OK to feel sad about the pain you are in. Often when you talk to someone who has the same sort of pain as you, you find your self feeling more accepting to the problem. You know you’re not alone. I have a friend I talk to about my pain and she makes me laugh because we know how each other feels and we know we can be open and honest and support one another.

Chronic pain, such as scoliosis is real. Do not think otherwise. If the pain you’re feeling matters to you, that’s it end of story. It matters. It’s real, you don’t need to justify yourself.

Remember- go you 🙂 you’re awesome 🙂

When I’m in pain I often think of Joey off Friends holding his pizza box going “I’m curvy and I like it”. It makes me laugh, which then hurts.

See you on the next blog.

I’m on the Twitter @PhilippaB
I’m on the Instagram @VisuallyImpairedPip
I’m contactable on the E-mail? is that right? randommusings@gmail.com

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