Lands End Fundraising Update

Hello all, 

This is an update on my fundraising. 

Since the 21st of August 2020 I have cycled on the bike in the garage and counted my daily steps to complete a total of 667 miles for The British Heart Foundation and The Children’s Heart Surgery Fund based in Leeds. 

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The 667 miles is a number which you get when you add up the distance from Bradford to Newcastle, Newcastle Liverpool, Liverpool to Bristol and finally Bristol to Lands End. 

Donate Here

The reason I chose these locations is that all of them, except the final location have Heart Units dedicated to looking after children with heart problems. When I first started this and I was planning  out my route I made sure to include Leeds. 

Leeds is where the Children’s Heart Surgery Fund are based. They were set up in 1988 and have been caring for babies and young people with heart conditions and their families ever since. 

Read about them and their amazing work here. 

During this pandemic the charity sector has been hit hard. I wanted to do something to try and help raise money for two charities I care about very much. In August I turn  30 and also wanted to mark the occasion. What better way to do that than to try and raise £3000? 

Why am I doing this? I was born with Congenital Heart Disease. Read my story here. 

Now I need to decide what is next. 

My brother has been drawing me maps as I’ve gone along this virtual trip, like the one in the banner at the top. He also drew me a picture of me carrying Yoda!

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So far I have raised £1182 of my £3000 target. I am very grateful for all the donations so far. If you could help me share my story and help me tell more people about these two amazing charities that would really mean a lot to me. 

I would also love to thank Ellie at the BHF for her support and regular catch ups to see how I am doing. Lee for his fabulous article in the T&A! Sue who was the first person I spoke to from the BHF all those years ago and who gave me an insight into how charities are run. Every person I have ever spoken to at the BHF have been incredible.

Also Lisa from the CHSF, she always has a smile on her face and is always positive. Its great having a connection to a charity during its early years and being able to hear how they are doing now is marvellous.

I’ll be back shortly after I have planned out the next stage of my fundraising efforts. 

Follow me on Twitter @PhilippaB or @PipsTurning30

World Book Day

Hello all, 

I’m back after my Covid Vaccine, but that’s to be written about in another blog. I am feeling very grateful though that I received the vaccine. 

Today is World Book Day and for as long I can remember I have loved books. I always enjoyed English at school and it was probably one of my favourite subjects. No wonder I opted for an English based Degree in Media Studies. 

Do you remember in primary school when you used to get a new book? There was one occasion I remember trying to pick a book and putting it back and choosing from another basket. The teacher told me I had to chose a book which went alongside my reading level. This irritated me. I told them what kind of books I was reading at home and didn’t understand why I had to chose from the book box with my reading level. Eventually we came to a decision. If I read the books and brought them back quickly then I could move up the levels quicker. I did this and got to read harder books and proved a point which we all knew I could do, but for the sake of the system I had to have it noted down. 

Looking at a  book shelf, there isa clock on the all above.

Reflecting on this and the fact that it is World Book Day I have been wondering how many books was I aware of when I was younger which featured Disabled people? What is that representation like now? 

Looking back I do not really remember that many books, especially from when I was younger which featured Disabled characters. Thinking about this I have just asked my Mum if there was a character in the Biff and Chip books who was a wheelchair user. She says there was. 

For World Book Day I have done a bit of looking around and found that there are some great books available which represent Disabled Children. A great article I found was in the HuffPost about a variety of books which feature Disabled people as the main characters. In the article there are a number of different representations, the best part is that in some of the books the Disability isn’t even the main plot line. Which is fantastic. After reading it I sent the article to a friend who teaches in a primary school and they loved it.

Part of the problem is not just having books about Disabled people, but also having them be written by Disabled people as well. So you know that as a Disabled child  ‘hey this book has someone in it like me’ then they can be told the Author is like them too. It is about allowing people to see themselves in stories and know that the person behind the story is able to understand how they feel. 

Whilst looking at wether representation is better today than it was when I was in school I came across Pablo and the Noisy Party. There is a TV series linked with the book which is brilliant because as we all know everyone learns differently. Written on the books Trust Website is ‘This empowering series competently reflects neurodiversity and like the TV series, has been developed by writers who are themselves on the Autistic spectrum, and is based on real-life experiences.’ When I saw this quote on Books Trust it made me smile to know that the comment I made in the previous paragraph is trying to be addressed. Children need to not only see themselves in books, but know those writing them are like them too. 

The other part of the problem is having access to these books for all children. It can not just be the case that we talk about them only to parents of Disabled children. They need to be in book boxes in every school. Otherwise how does it just become the norm that the woman in the street is using her white stick to feel the floor beneath her feet and get around safely? Or that the man wears headphones in the supermarket and hums quietly as he puts his items into his basket because he could be Autistic? 

These questions need to be addressed and by writing this blog have made you a bit more aware that these books are out there. You just need to look. But them being out there is not enough. They need to be in classrooms and libraries and they need to be seen as the norm. Hopefully by writing this and also in sharing the book list with my friend I have done something to help make a difference. 

Here are the links below to some of the things I discovered whilst doing this blog. 

Until next time,

Philippa B.

If you have enjoyed this blog and would consider donating to my fundraising for The British Heart Foundation and the Children’s Heart Surgery Fund, please click here

Pablo and the Noisy Party https://www.booktrust.org.uk/book/p/pablo-and-the-noisy-party/ 

Fun in the Sun https://www.scope.org.uk/advice-and-support/storybooks-featuring-disabled-children/ 

Disability Horizons- https://disabilityhorizons.com/2019/09/8-books-with-a-disabled-character-as-the-lead-or-focus-of-the-story/