Scoliois and Chronic Pain

One of the areas I frequently blog about is Scoliois because I am living in constant pain. The pain does vary day to day, but it is always there. 

At the moment I am sat in my comfy chair whilst trying to rest my back. I am wearing 3 layers, one if which is a long hoody which is quite fleecy. The chair has a throw over it so no cold air can get in where the arms of the chair are. I am considering putting my dressing gown on. Hang on…I have my dressing gown on now.

One of the problems I have mentioned before is the change in the weather causing me to have long periods of pain, mostly occurring more profoundly over the winter months.

I wish more people understood chronic pain.
I wish people understood that I take painkillers on a daily basis because that is a way for me to manage my pain.
I wish people understood that I do go to physio and I do have a sport massage to reset my muscles.
I wish people knew I can’t just get on with it without adapting my day to suit my pain.

Chronic pain will always be there no matter what I do. Also just because you have the operation done to correct a curved spine does not mean that the pain will go away. It will still be there in some form.

For those of you living with the impact of Chronic Pain, remember you are not alone. Your frustration and anger surrounding your pain is completely valid and I also know that hearing this does not make it any easier.

Knowing what can make it easier? I really don’t know.
This blog was just written because I am having a pain day and wanted to write about it. I wanted to share my thoughts to get them out there. Scoliosis is a difficult thing to live to live with. Especially when you were told as a teenager it wouldn’t get any worse and you probably don’t need the surgery…then when you’re in your twenties you’re told it is severe…. What are you left with? Anger… frustration… sadness…. But hay ho…. We carry on.

Thank you for reading my musings. 

Rugby League World Cup

Hello all,

Hope you’re well.

Over the past few weeks I have been enjoying the Rugby League World Cup. The world cup is being held in England which is amazing because I don’t have to worry about time zones and missing any games.

I love rugby league and soon as I knew England were going to be hosting I wanted to go to a game. My brother bought us tickets for a semi final at Elland Road for my Birthday, my Birthday is not on this day. Then I got a new England shirt designed for the world cup.

As we all know the pandemic hit and the games were moved into the next year. Now they’re finally here I am able to enjoy all the rugby league I want.

One of the best things about these games is that they are all happening at the same time, Men’s, Women’s, Wheelchair games and for the another first the Physical Disability Rugby League World Cup. Which England have won. Which is incredible.

As a Disabled person who is also a woman this makes me very happy. The BBC and the RLWC organisers have ensured that all major games are being shown across the BBC. This means they are getting air time to all games. Showing everyone that Rugby League is a game for all.

Next Friday we will be setting off into Leeds for some food and then going to Elland Road. I am really excited. I am aware that as a Visually Impaired Person it might have been better to watch it on TV so I can see and have the commentary. But my brother got us great seats, not too far back and close to the try line so we should see some amazing tries. Plus when you have an opportunity to see a World Cup you take it.

Over the past few weeks I have been following on Twitter and the fans are really getting behind the games which is great to see. We’ve also had some amazing commentary from some incredible legends of the game such as Robbie Paul, as a Bulls Fan this has been great to have him commenting. Tanya Arnold has been brilliant with championing the game in general and I’ve enjoyed her commentary throughout.

I have also found Andrew Voss’s commentary to be brilliant, not just on the pitch but his V ratings of some of Englands finest foods- he didn’t get all the extras when ordered a kebab so he rated it as poor. He was told he would need to order it again add the sauce and salad. Vossy also loved the ever humble Greggs sausage roll.

The other first which I have enjoyed is Kasey Badger refereeing a mans game for the first time! Incredible work and the responses to this on Twitter were incredible.

Me and my friend were going to watch the first women’s game at Headingley, England v Brazil….but unfortunately we were both working. I watched Australia v Cook Islands on iPlayer for their first game and the tries just kept coming! Pelite just couldn’t be stopped.

Can you tell I love rugby? If you want to see more about this incredible World Cup of firsts follow this link.

As I say the commentary has been wonderful and I have really enjoyed it. I love rugby and the community within it. Here’s to the start of the Wheelchair games this evening. Claire Balding is out supporting the team as she is the President of the RFL Council. Come on England!

Are you enjoying the rugby? Let me know.
Twitter: @PhilippaB