Hello again,
The weather is getting colder which means my back is hurting more and more. It is not just my back which hurts with the cold, but my joints ache too.
I have to keep going for my sport massages. These are really helpful because it helps to reduce the tightness in my muscles. This means I can move around a bit easier and feel a little less pain. I then have to keep doing my physio exercises to help keep the muscles and joints as usable as possible.
However, this is just a continuous cycle of sport massages, physio exercises and pain relief.
Due to my curved spine I will always be in some level of pain. It is just about how I manage it. There is no full solution to Scoliosis, which is what the condition is called when you have a curved spine. Even if you have the surgery to correct your spine you can still have to deal with the pain.
Currently I have pain in my right shoulder and neck which then runs all the way down the right hand side of my body. I am trying to keep warm today as it is due to snow heavily later on. The temperature is currently 1.
I am not a fan of the cold due to the high levels of pain I have to put up with. I wish people could understand a little more about the constant pain people with Chronic pain have to deal with.
I am going to go do some other things and get on with my day. Stay warm and safe.
Thank you for reading,
Philippa.
Category Archives: Scoliosis
Scoliosis Awareness Month 2024
Happy Scoliosis Awareness Month
Scoliosis is a condition where the spine twists or curves to the side and it’s normally appears between the ages of 10 to 15 years.
I was officially diagnosed as a teenager and was told my Scoliosis was mild. That I would not need to have any surgery and that if I did have the surgery it would only be down to cosmetics. A the time I decided not have the surgery as it was very daunting and I was also about 13 and would be coming up to do SATS/GCSE’s.
One of the other reasons I did not have it done was due to all my other health conditions. Due to them not thinking it would get any worse we decided not to have it done.
However, as I got older I found myself experiencing more and more pain. To the point at which it became a daily occurrence.
I think had I had known that my Scoliosis would turn from mild to severe I would have opted to have the surgery. When you have a lot of health conditions it can be hard to navigate and manage them all.
If you or someone you know has Scoliosis it is important to really consider having the surgery. It took me along time to decide against it. If you can, speak to people who have had it done. Speak to a surgeon and get as much information as you can.
There are support groups available and you can find information online. Here is a link to the NHS page about Scoliosis. This page, Scoliosis Support and Research is all about general help and support, including pain management and finding a specialist.
Now I manage my pain through a mixture of exercises, sport massages and physio. I also take painkillers.
Living with scoliosis is hard and just because you have had the surgery does not mean all the pain disappears. You will always be living with some level of pain.
Thank you,
Philippa B.
Negative Narratives
Hello allo,
The government has really ramped up it’s messages about Disabled people hasn’t it?
There has been a lot of negative narratives and harmful stereotyping surrounding our community. But where to begin…?
I think I’ll start with the blatant lack of understanding. The government does not seem to not understand the benefits system… They do not seem to understand that Personal Independence Payment or PIP, can claimed whether the person is in work or out of work.
Furthermore it appears as though people do not fully understand the word ‘independence’. The payment exists to support Disabled people with extra costs of living with a Disability.
You also do not automatically get the benefit because you are diagnosed with ADHD, or a Visual Impairment etc.
It is a horrible process which a Disabled Person needs to go through. They ave to fill out a really long form where they tell the DWP how their Disability affects them. Once they have filled in this form, and provided medical evidence they then have to go to an assessment centre or have someone come to their home and ask them really invasive questions about their daily routine, washing habits, eating habits, whether or not they have job or friends… then the Disabled person is given a score and this score then adds up to how many points they get. This scoring system then decides if they are allowed any benefits which could help them to cover the extra costs which come with being disabled.
More often than not the person will fail this assessment and will then have the option to appeal the decision. Again the decision could come back as a ‘no sorry your visually impaired and can’t see very well, you don’t ever leave the house alone on new or unfamiliar journeys, but you don’t qualify’.
Then the Disabled Person has the option to essentially take the government to court. This is called a tribunal. You have to go and sit in front of a Judge and Doctors and make the case that you are Disabled and just want some help with the extra cost of living and keeping yourself alive.
The tribunal process is separate to the DWP and it is independent. It does not have any government backed companies behind it, like ATOS trying to save the government money.
A majority of the time Disabled People win these tribunals because the people at them are medical professionals and people who practice law. Therefore they understand the person in front of them and their needs and what they are entitled too.
Do you honestly believe it is an easy process putting yourself through all of that? So many Disabled do not have the energy or support to go trough it. Quite often Disabled people might end up taking their own lives because they have run out of energy and money to support themselves because whilst they are fighting all of this they have no benefits because they have been stopped.
Whilst I am writing this I am very much aware of the level of pain my right side is in due to my Scoliosis.
Do not judge Disabled People. We have just as much as right to exist as anyone else. Our lives have meaning.
If you are reading this and were not aware of how these new policies will impact Disabled People please contact your MP and express to them your concerns. Help Disabled People to be able to just have the right live.
Thank you,
Philippa B.
Scoliosis and Community
As it is June I will be writing another post about… you guessed it… Scoliosis Awareness.
I have only ever met 3 people who have the condition. One of them is a friend of a friend. The other is a person I know through work. They are both really lovely and it is nice to be able to speak to people who have Scoliosis as it can be quite lonely at times.
It can be lonely because people don’t always understand when you say ‘my back hurts’. People may respond with ‘oh… mine too’ or ‘have you tried Pilates?’ Please don’t do this when someone who has Scoliosis or, any chronic condition tells you their back, or something else hurts.
My spine hurts because it is so curved my spine curves into my shoulder blade. It doesn’t go underneath but it goes rather close.
The other person I know who has Scoliosis is my Mum. Her spine is not as curved as mine, but it’s still curved.
As not a lot of people know about Scoliosis is can be quite lonely. This is why it is important to share our experiences. So we can raise awareness and allow people to feel less alone.
This is important because it helps reduce the negative impact on your Mental Health. If you know there are other people out there who have the same condition as you then you can talk to them. Talking about things like diagnoses, pain management or even just activities you enjoy which are low impact. I joked with the person at work about the gym and we were both just like ‘nope…. Physio exercises are enough thank you’. These little things really do help you to feel less alone.
If you have stumbled across this blog and you have Scoliosis please follow me on Twitter and join the community of Scoliosis Warriors.
Scoliosis Awareness Month Ouch
Hello all,
Hope you are all well.
June is Scoliosis Awareness month and it true fashion my back has been hurting a lot more recently.
One of the things I need to do is get some more sport massages booked in. They are very beneficial to my back and mental health. The massages really release a lot of built up tension which causes me to be in pain.
The past few weeks I have been trying to do a few more different exercises on top of the normal stretches I have been given by my physio. The one which I am working on is arm and leg raises. It is quite difficult because I also have Dyspraxia so my balance is not the best. Doing these exercises helps with my back pain and helps my balance. So that’s two problems being addressed in one.
Doing the exercises in the long term will help to improve my core strength which will allow me to cary myself better. This will then mean I am using all my muscles, so that I am not over reliant on just the one side of my body.
In the short term it is causing me more me pain as I get used to my back having to work muscles it doesn’t normally, due to my scoliosis.
In the long term it will be better because the muscles are being used more and more. Helping me to stand up straighter, build strength in my shoulders and hips. I know it will be beneficial, it just really hurts.
The exercises along with the sport massages will help me to feel more comfortable, more relaxed and less tense. Reducing my pain and also improving my mental health.
Do you have Scoliosis or suspect someone may have it? Don’t be afraid to ask questions. Go to your doctors and ask that they check to see if the person has it. The person will be asked to stand up as straight as they can, then asked to lean forwards. This will allow the Doctor to see if the spine has a curve or if the shoulders are not straight.
If you want to seek any advice then check out Scoliosis Association UK.
I am on Twitter @pbarraclough
Scoliosis
Featured
Hello all,
I have decided this weeks post will be all about Scoliosis. Recently I have adjusted the exercises I do so I can try get a better balance, strengthen my core and shoulders. How exciting.
Doing physio exercises is very tiring. Normally when you go to a physio via the NHS you get exercises to do and they will, if necessary do a sport massage to release some of the tension. This is not normally the case though.
I do my exercises and then I have sport massages separately. Yes they are costly however I think it is really worth it. The sport massage releases the tension and helps you to start again. Then you can do the exercises to rebuild your strength and reset your muscles.
All of this does not stop my need to take painkillers on a daily basis. Right now for example, I am sat in my comfy chair but I have had to take pain killers. I am also wearing layers to keep my back muscles warm.
Scoliosis is very hard to live with and there is no cure. Even if you have the surgery you still have scoliosis. You still have days when you are in pain.
If you have any questions around scoliosis please feel free to drop a comment a below. Also check out SAUK.org.uk
Thank you for reading.
Twitter @PhilippaB
Being Sociable when disabled
Status
Hello all,
It’s been a while. I’ve been enjoying some time away from my blog and it’s been nice.
One thing which I am very excited about is the summer coming. It is always nicer when the weather is warmer and we can spend more time outside. The other thing I like about the spring/summer is that the days are longer. This means I can try and go out a bit more than I would in the winter months. Being visually impaired means I don’t do well in the dark. Having scoliosis is also another factor which stops me doing stuff in winter. The reason being my back hurts more due to the cold.
But spring and summer are on their way.
The other day I got to meet up with my friend which was lovely. I have not seen them in a while. We went for cake and had a wander. It was lovely to catch up.
I struggle to get out at times as I get quite tired with work. This is frustrating as it leaves me with little energy. So I often feel as though I can’t see my friends as often as I would like. But this is one of the problems when you’re disabled. I am always grateful to my friends who are understanding of this.
This problem of not feeling able to socialise as much as I would like is something the disabled community is not new too. We all have problems with being able to get out for a variety of reasons. Either due to tiredness or lack of access for our needs. There are many reasons.
I hope the world can be more accommodating for the disabled community as we have so much to offer. We just need support.
Anyway that’s my post for today. I shall try be back again soon with more posts. Have a great day.
Lucy and Yak Fleece
Hello again,
For a while now I have been wanting a fleece from Lucy and Yak. The materials are recycled so it’s a great win for the environment. Also everyone I know who has their stuff seems to really like what they buy.
The other day I treated myself to a nice dark blue fleece. The fabric is very soft, the colour is lovely and the fit is very snug and cozy.
When I’m buying clothes I have to be very careful as I am quite fussy about the feel and the fit. As I have a Scoliosis it is very important to me that the fit is comfortable. I ordered a small after looking at the size of the model was wearing in the picture. Normally I would go for a medium. But fleeces are meant to be baggy so I went with the small.
When it arrived I was happy with the packing, all recyclable and mostly paper. So it all went in the recycling bin. When I took it out it felt nice and soft. I have been wearing it for two days now and I really like it.
I tend to be quite cold so need to wear three layers. Even in the house. However with this fleece I am only wearing two layers! My back feels comfy in the fleece and I am nice and warm.
I reckon I’ll be buying another item in the future.
The price was £45 which for something so comfy and which was from a recommended brand I wasn’t too fussed by. Its also going towards items which are better for the planet, so why not.
I know this isn’t the usual kind of blog I post, but it does link to my Scoliosis as clothing is very tricky when spine is curved.
If you would like to read a few more posts about Scoliosis please look here.
Thank you for reading, speak soon.
Philippa.
*I have not been asked to write this or have not received anything for it. I just like what I bought.
New Long Cane
Hello all,
Last week there was no blog as I had caught Covid.
What I was going to write about, which will be topic of this weeks post is the first week with my new long cane from RNIB. No Jab Long Cane.

The cane is a little longer than normal but it is still safe to use. It is a graphite cane with red sheep skin handle, I know right…fancy. With it being graphite it is lighter than my aluminium one.
The opening line for the description by the RNIB is ‘This revolutionary shock-absorbing long cane is designed to eliminate the sharp jabs that can occur when cane tips get stuck, for example, in a drain, while you’re out and about.’
The shock absorbing element of the cain is the reason I bought it. Due to my curved spine I find that my pain levels are increased whenever the cane whacks against something.
DareDevil.
As soon as I opened it and saw it, I just thought DareDevil. I mean who wouldn’t? I messaged my friend straight away and sent her a picture. It’s so good.
But does it really work?
Yes, yes it does. The Caine absorbs 80% of the shock created when you walk into something. It’s especially helpful when you are walking along uneven pavements and the cane catches causing me to have a lot of pain.
I had to swap the tip though as it came with a marshmallow tip, I prefer rollerball. The reason being is I feel it glides a lot more smoothly along the floor and works better with my back.
The cane cost £56.99 ex VAT. It was a worthwhile purchase and I would urge anyone who can to try it out if they suffer with any form of neck or back pain.
Let us know how you get with it.
Until next time, Philippa B.
Scoliosis Awareness Month
Hello all,
Sorry for the delay in posting something. I have had a very busy few weeks.
Seen as it is Scoliosis Awareness Month I thought I’d better talk about this. If you have checked out other pages on my blog or you are following me on Instagram/Twitter you will know I have a curved Spine, otherwise known as Scoliosis.
I was diagnosed with Scoliosis when I was 13. At the time we were told it is pretty mild and I wouldn’t need to wear a brace. When I got to 16 we were told there was no need to have surgery to correct my spine so I went onto sixth form. The same thing happened when I was 18, I went onto university. We decided this as we were advised it wouldn’t get any worse. Obviously things can change and there are multiple factors involved.
Unfortunately as I got older the pain I was in got worse. Over the past few years I have been getting sport massages, alongside my physio. Thankfully the combination of Sport massages and physio, along with pain killers, has enabled me to reduce the amount of pain which I am in. Although it does not stop it all together. Everyday I am in some form of pain because of my back and it will be like this forever.
I do low impact exercise, for example my cycling.
If you suspect you or someone you know has a curve in their spine I would urge you to go to the doctors to get it checked out. If they are able to spot it early then you can have treatment to help. It’s also really important to work on your posture. For example, when I’m at work I try not to lean against the tables. It might feel comfortable in the short term. In the long term it is not. Right now while I am writing this I am having to remember to sit as straight as possible. As I try to do this it feels uncomfortable. It is the right thing to do for my posture.
Back pain is more common than people realise. Be kind to yourself and take regular breaks to sit down, or have a walk around. Remember that it is not easy living with back pain and everyone is different. There are no quick fixes. The amount of pain someone is in takes its toll on your physical and mental health. So be kind and don’t tell someone with back pain ‘oh you should just….’ because they’ve probably already heard it.
It has been months since I last went for a sports massage. I have messaged my physio and asked if they can fit me in. I have an appointment. The pain in my back is more prominent lately, I can feel it all down the right hand side. It is also in my neck. As well as the pain I also loose strength in my right shoulder. So opening doors is very tricky. I basically have to put my whole weight against the door to open it.
Really looking forward to my sorts massage. It will be a long time coming. The image below is one I drew a while ago, but did not wish to share. However, I now feel I want to. It was drawn on Procreate.

A hand drawn picture of a back to show a person with a curved Spine.
Thank you.
While you’re here please check out my post on my fundraising, I am trying to raise £3k for The British Heart Foundation and The Children’s Heart Surgery Fund.
On Twitter: @PhilippapB
On Instagram: @VisuallyImpairedPip