Hello all,
As you may have seen this week in the news there has been a lot of negativity around Disabled People, more so than normal.
From articles about the government wanting to get people off of sickness payments and back into work, to articles about the government cutting funding for Disabled Children in schools.
As a disabled person all this negativity in the news is very difficult to see. It makes me feel like people think of Disabled people as a drain on society, that we don’t have value and that the government is pushing even more so to make life more difficult than it already is.
We have value, we deserve support and we do not deserve all this vile hatred being directed at us. This government, for far too long, has demonised Disabled People and acted as though we are sponges, that we leach off of society.
We do no such thing. We want to live a life like everyone else. Just because we are Disabled does not make us any less than those around us.
We have feelings, we have dreams, we have wants and needs. To see the news attacking Disabled People is appalling.
We are being attacked because we are seen as an easy target, people think we get all this money thrown at us because we’re Disabled. This is far form the truth.
Have you ever looked to see how much a wheelchair costs? Do you know the cost of having to pay for a taxi everyday because you are exhausted and in pain from being at work all day? Yes, you read that correctly- work. Get another job I here you cry? I like my job and I am good at it. How much do you think it cost to invest in making adaptations to your own home to make it accessible, because surprise surprise our homes are not built with accessibility in mind?
The world is not built for us, as I write this I am on my day off and my whole right side hurts. This is because I have Scoliois. So no matter what job I have I will always be in pain. I have a great physio who helps me to manage my pain. This Physio is not an NHS one. The NHS does not offer sport massages as a way to manage pain. I pay to see my physio through my benefits. He helps reduce the pain I am in on a daily basis. This is on top of me doing my physio exercises.
Some Disabled People can’t work and that’s none of your business. We shouldn’t have to justify ourselves to you. For those of us who do work, that does not mean we are frauds. We all have our challenges, but that does not make us any less than a non Disabled Person. We are people too.
Thank you,
Philippa B.
Monthly Archives: September 2023
Books in 2023
Hello all,
So far this year I have read seven books. You might be thinking, that’s not a lot! But last year I read 9. I will be on track to read more than the year before.
Reading is one of my favourite things to do. I enjoy it because you can always learn something new.
I am continuing with learning about Autism, but I am also listening to books about Self Care. Which is really important especially when you are trying to get better at it.
The other books are ones I found about people I like or topics I find interesting. Have a read and let me know what you think.
1. The Big Bang Theory
By: Jessica Radloff
On Audible
Summary: ‘The definitive, behind-the-scenes look at the most popular sitcom of the last decade, The Big Bang Theory, packed with all-new, exclusive interviews with the producers and entire cast.’
I love the Big Bang Theory and saw this book was avail be to pre order. It was a great listen. The show itself was a wonderful thing because it made science more mainstream. One of the things the book talks about is Sheldon and how he’s one of the special kids, but never actually saying he is Neurodivergent.
I always liked Big Bang Theory and I always felt like Amy could have been Neurodivergent too. I related to her in that she was always struggling to get social cues, not to the same extent as Sheldon, but I think that’s because as a girl she would have learnt to mask.
2. Self Compassion
By: Kristin Neff
On Audible
Summary: ‘Kristin Neff, PhD is a professor in human development whose 10 years of research forms the basis of her timely and highly listenable book. Self Compassion offers a powerful solution for combating the current malaise of depression, anxiety and self criticism that comes with living in a pressured and competitive culture.’
This book has helped me to put things into practice. We can often forget how important Self Compassion is and this book is a great way of looking at even the little things we can do to make a big difference. Like how we talk to ourselves when we do something wrong.
3. My Autistic Fight Song
By: Rosie Weldon
On Audible
Summary: ‘My Autistic Fight Song is a memoir that follows Rosie Weldon’s journey from a college drop-out as she tries to achieve her dream of being a qualified accountant. With the odds stacked against her and the stakes high, she refuses to give up on her dream.’
This is a book I was waiting for and ordered it as soon as I could. I loved it. As an Autistic Woman who also went to uni and was undiagnosed at the time I found this book to be very relatable.
The thing Rosie does not shy away from is when she discusses her struggles with Mental Health. It was a very moving part of the book and the way she handles the conversation is very delicate.
4. Have I Told You This Already?
By: Lauren Graham
On Audible
Summary: ‘From the beloved star of Gilmore Girls and the New York Times bestselling author of Talking as Fast as I Can comes a candid, insightful, and wildly entertaining essay collection about her years in show business, featuring stories that range from the sublime to the ridiculous.’
I just love Gilmore Girls. I can’t believe how long ago it was now. Lauren Grahams narrating this and in her chatty voice is wonderful. I wish we could meet and have a coffee.
5. Untypical
By: Pete Wharmby
On Audible
Summary: ‘It’s time to remake the world – the ground-breaking book on what steps we should all be taking for the autistic people in our lives.
The modern world is built for neurotypicals: needless noise, bright flashing lights, small talk, phone calls, unspoken assumptions and unwritten rules – it can be a nightmarish dystopia for the autistic population. In Untypical, Pete Wharmby lays bare the experience of being ‘different’, explaining with wit and warmth just how exhausting it is to fit in to a world not designed for you.’
This book was great, it really made me stop and think, why is the world so hard for me…. thats why…
It is books like these which make you stop and say ‘I need to be kinder to myself because I am in a world not built for me.’
Discussing things like small talk to an Autistic Person to a Neurotypical is always amusing to me. Small talk is there to fill a void and pass some time, but if I have all the info I need, why do I participate in it? How is the weather today? What you having for tea? When he discuses small talk in this book it made me chuckle and agree.
6. A Life on Our Planet
By: David Attenborough
On Audible
Summary: ‘See the world. Then make it better.
I am 94. I’ve had an extraordinary life. It’s only now that I appreciate how extraordinary.
As a young man, I felt I was out there in the wild, experiencing the untouched natural world – but it was an illusion. The tragedy of our time has been happening all around us, barely noticeable from day to day – the loss of our planet’s wild places, its biodiversity.’
For a start it is David Attenborough and it is him narrating so that’s basically a major win.
This book was very powerful. We have been told time and time again we must do something to slow down climate change. This book explains how we are all connected and that everything has an affect on something else. That we must work together to make changes now.
7. Spectrum Women
By: Barb Cook – editor, Dr Michelle Garnett – editor, Lisa Morgan
On Audible
Summary- ‘Barb Cook and 14 other autistic women describe life from a female autistic perspective, and present empowering, helpful and supportive insights from their personal experience for fellow autistic women. Michelle Garnett’s comments validate and expand the experiences described from a clinician’s perspective, and provide extensive recommendations.’
This book is the latest one I have read and it was brilliant. Coming from so many different women talking about their experiences. It covers many different aspects of life that there is a part of this book for every occasion.
I loved the part about self care as I think this is something we don’t focus on enough. If we don’t make time for self care our executive function can go out the window. So as the book suggests, schedule some time in to do the things you love.
I hope you have enjoyed my list and I would urge you to read these books I have mentioned, especially if you are Autistic yourself.
Have a great day doing what you’re doing and if you have any book recommendations for me please leave a link below and lets share.
Thank you,
Philippa B.