Things you should not do.

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Hello all,

How are we all doing today?

Normally I do not go out alone as I struggle to get to new places independently. Getting to work I do alone as it is a familiar route.

When getting on and off trains it can be quite difficult for a few different reasons, one of which is when the platform and trains are busy.

It can be very helpful when someone asks me if I need help. My preferred way of people asking is if they say ‘hello’ rather than touching my arm to get my attention. This is just because I don’t like people in my personal space.

If I say yes to you your help then please let me take your arm and the guide me onto the train. Then help me to find a seat. Once we have found one I will say thank you and that I am happy for your help.

People will ask me if it is OK to ask a Disabled person if they need help. My response is always, please ask if you are unsure. The reason I say this is because it is always nice to be asked and if we do not need help we will politely say no.

Things I do not appreciate as a White Cane user are people assuming I have no site at all and using this to think it is ok to push past me.

This week in one train journey the following happened:

The train pulled up and I was about to get on when someone got on in front of me. Then another person decided to the same. The second person did so as my cane was helping me navigate the train step. My cane caught in between his feet and he could have fallen over or I could have misjudged the gap and hurt myself. This is all because people are arrogant and want to get on first.

The train is not leaving any quicker because you got on first.

Then getting off the train I stood waiting to go through the doors from the carriage into the exit. My cain was stuck out and I was ready to move through the door. Then someone stepped round the side of me and pushed through the door before me. These doors are quite narrow. My cain got stuck between their feet as they continued to walk off the train. Once again this could have ended up in injury to myself or them.

If an injury were to occur, it would not be my fault. I have a cain for a reason, if you chose to ignore it and you fall over it is not my fault at all. You may think that’s a bit harsh, but it is not. My eyes don’t work well, which is why I have the cain, your eyes work, so please use them.

Please be respectful of Disabled people, well everyone really. Personally I think if you were to ask if someone needs help it is OK to do so. As long as it is coming from a good place then it is all good.

Thank you for reading.

CVI

Hello again,

Thought I would drop in. I was wondering what to write about and then I decided. My horrendous eyesight.

So the other day I was helping to put stuff away after shopping and the front door had been left open while we bring stuff in from the car. I heard a noise which sounded like a bell. I turned around and looked towards the door. There was something there, I couldn’t make out what it was. So I was startled. The mystery thing then moved. My eyes refocussed and I realised it was a cat.

The cat was black and white and our carpet is a dark blue, almost black. This is what made the cat more difficult to see.

One of my eye conditions is Cerebral Visual Impairment. My brain and my eyes do not always communicate with one another. Which leads to instances like the above where I can be looking directly at something but my brain just can’t understand what it is at all.

This can be very dangerous when crossing roads.

When I realised it was a cat I saw it turn around and move back outside. I went to close the door. We do not have a cat so this is why it was startling because it was out of the ordinary and clearly my head had no idea was to do with the information.

The same thing happened again this morning. I was putting on a fleece and a small moth was on the sleeve, I did not realise and then it moved onto my hand. I flapped my hand and it wouldn’t move. So I flicked the moth off and it disappeared.

It is very difficult when you can’t see but when you have CVI its all confusing because you are looking but your brain is just not doing what it should be with the information it is receiving from your eyes. This is very exhausting.

Please follow the link to the CVI Society to learn more https://cvisociety.org.uk

I am off to enjoy a nice cup of tea and watch some TV. Enjoy the rest of your afternoon.

Thank you,
Philippa B.

Shopping when you’re Visually Impaired

Hello all, 

Been having a bit of think about what the next blog post would be. After some deliberation and a spark of inspiration it hit me…. Shopping! 

Today we went to M&S to do some Christmas shopping. It is better to go during the week for me as it is not too busy and therefore not overwhelming…well….

When we got inside I felt OK as it was not too busy at all. Then we wandered around and after a few moments I felt a bit like my heart was racing a little faster than normal. I told myself it was OK and just reminded myself why this was.

Why was this you ask?

One of my visually impairments is Cerebral Visual Impairment, which means my eyes and brain don’t always get along. The messages my eyes are receiving are not being interpreted by brain. This isn’t great, but now that I know why this is it’s easier to manage the emotions which are caused by it.

I will write you something about CVI later on. But if you want know more, please check out the CVI Society.

When we were in M&S I became quite overwhelmed. One of the reasons for this is that there is a lot of colour and shapes and the lighting is quite intense (hence why I wear sunglasses)

Having colours can be very helpful in some ways as it means colours can be associated with things. For example, if I am trying to find the right size of clothing, I can say size x is y colour. Then I am not having to look for small writing. This is great for my Nystagmus, so I don’t have to focus on tiny writing. But its not great for my CVI because if there’s a lot of colour and shapes and ‘stuff’, my head just goes ‘waaah…wait…hang on….nope. Too much information at all once…’ This will then result in either a ‘shut down’ or ‘meltdown’.

A shut down is where everything just needs to stop and I need to sit down. Preferably on the floor to feel grounded and allow myself to sit eyes closed and head in hands. It reduces my need to take in sensory information. 

A meltdown is similar in that it is your body telling you no! It is a way for you to physically express the emotions you can not verbally express during a melt down. This is not, I repeat not, the same as a toddler having a tantrum.

Shopping can be very stressful for those with CVI and we need coping mechanisms. One of which is going shopping on a quieter day. We shouldn’t have to just shop online. This can be just as bad if website accessibility is not user friendly. But that’s a blog for a different time. 

One thing I like to do which is important to those of us who are Visually Impaired is feel the clothing. As we don’t have the ability to take in things visually in the same way seeing people do, yes I am calling you that, we rely on our other senses. I found some great PJs  and they went straight in the basket after I felt how soft they were.

I was mooching around the bedding section, I love bedding, only to find myself feeling all the fleecey stuff. I stopped and said excuse me to someone who’s trolley I nearly bumped into, but they said it’s OK and let me go past. This was nice as they recognised my cain and didn’t tut at me. Which does happen.

Anyway, overall M&S was nice and I like shopping there for various things. They are always happy to help. Which is a massive part of shopping. 

Have a nice evening all and let me know what you think in the comments below. 

Thank you,
Philippa B. 

What I bought from RNIB

What I bought from the RNIB. 

Hello again, 

A few days ago my order from the RNIB arrived in the post. I ordered a Ambutech black leather cane pouch (MP39) and Optima folding pocket magnifier 6× (MAG85). 

One of the things I really struggle with is reading numbers on bank cards. On some new cards the numbers are not raised. They are printed on the card. The other thing with new card is the fonts are bit cleaner, I think the numbers on cards are a little bigger on my own bank card. Another interesting thing I have found about bank cards is they have a new little cut out in them for your finger to rest in. This is particularly helpful when you can’t see well. Rather than looking, you can just feel for the cut out.  

So back to this magnifier, its a 6x magnifier which I used the RNIBs article to check which size is right for me. The magnifier folds away into a little circular hard plastic case. Which you can the put neatly  into a little leather pouch. Perfect for carrying around. 

Using it so fare it is good for  just looking at quick simple things. I would not use it for reading properly though as having to move the magnifier sets of the wobble of my Nystagmus. But so far I am very pleased with my purchase. It was £18.50 which for something I will find very beneficial I think is a decent price. 

The second thing I purchased was the Ambutech black leather pouch for my long cane. The reason I bought this is because I find when I go out and about, pre covid, I find myself struggling with keeping my cane neat and tidy. It also gets frustrating when you have nowhere to prop your cane. Meaning you have to lay it on the floor. Which means it is not very clean at all. It’s very important to try keep the handle of your cane clean, especially with how things are. So if you get the pouch you can just fold your can away and not worry about it unfolding itself. This is particularly hand when you’re on a long car journey. So you can put your can cane your bag and not worry about it getting in the way. The pouch is £26.99. 

Believe any cane user when they tell you it’s frustrating that they are unsure where to put their cane in the car. When it is not stored properly it means it moves around and there’s quite a bit of noise. 

The question I have for any of you is, what do you use to make your life easier?