Disability History Month

Hello all,

It is the start of Disability History Month here in the UK. The theme for this year is life and death. How fun.

It is interesting that this theme would be the topic when the government have been having conversations around Euthanasia. I’m not going to get into that here because it is a very difficult topic.

My point is this topic alongside the current conversations surrounding our benefits system seem to fit in with this theme of life and death.

When you then consider the long waiting lists within the NHS for services such as mental health support this years theme seems quite interesting.

I’m going to focus more on the life side of this years theme, lets focus on giving Disabled people a quality of life which enables us.

Disabled people have a right to exist. We have a right to life.

We should not be looking to go backwards in terms of Disabled peoples access needs. Just because someone is Disabled does not mean they are lesser than.

Disability is a group which anyone of us can join at any time. Often as people get older they will develop some form of Disability. We need to ensure all Disabled people have access to dignity at every stage of life. We, as a society, also need to start seeing mobility aids as items which empower us. Which give us independence.

One of the sections on the DHM website shows you the themes since 2010. I would urge you to go back and see what some of those themes were. I know I will be revisiting those themes to see the journey the movement has been on.

I think there is importance surrounding the topic of death, but I do not have the spoons to cover it. Just remember to respect everyones opinion on this topic and remember to ensure Disabled people are included in this conversation.

Everyone deserves respect, dignity and choice.

Thank you for reading.

CVI

White Cane Awareness Day

Hello all,

Hope you are well. Some of you maybe aware that October 15th is White Cane Awareness Day. If you are aware then hurray for you. If you are not aware then well, you will be soon.

What is a white cane and who uses them?

A white cane is a mobility aid which empowers a Disabled person to have independence. This does not automatically mean that they can travel alone instantly. It takes a lot of work.

There are multiple forms of white cane. There is a symbol cane, which is held by the Visually Impaired Person to indicate that they are Visually Impaired and may need more time and space, or might require assistance.

The other cane is a long cane. This cane is used for the same reasons as above, but the person using it is using it to navigate their surroundings. It enables them to gain tactile feedback.

You may have seen some canes come with red and white stripes. These indicate the user is Deaf Blind.

I used to use a symbol cane but now I use a long cane. I find it works better for me as I have little to know peripheral vision. As well as many other things.

A red cane handle in the foreground. Behind is the ocean with some rocks.


Do I need my cane even if I am with someone?

Yes. My cane is something I use even if I am with someone. It allows me to let people know I need space and additional time. As well as it helping me to navigate my surroundings.

Why do we need long cane awareness day?
 
We need it because of the amount of people who chose to ignore us. There are people who will ignore our cane and step over it. They will push in front us on trains and rush to the disabled seating. They will then giggle about their ignorance. FYI. Not all long can users are completely Blind. We have limited vision.

The other day I was getting off the train and someone was getting on the train and chose to step right in front of me. I am not moving. I have had it before where people will refuse to move. Why? If you think you’re being clever…you’re not. Please refer back to those who think it is ok to rush to the Disabled seating and giggle.

We need White Cane Awareness days because of peoples lack of knowledge and more importantly peoples lack of acceptance.

You may have the gift of sight. Which is wonderful for you. Some of us do not. If people had to spend even half a day in the shoes of a Visually Impaired or Blind person they would soon change their attitude. This is also not the same as wearing a blind fold for a short activity as it does not accurately represent our day to day struggles.

Our canes give us mobility. They help us to navigate the world in a safer manner. It allows those around us to ask if we need help. I often hear people ask ‘I don’t know if I should ask if you need help?’ I always respond with ‘I always appreciate when people ask because I might not be in a position to ask for help. It is always better to ask than to ignore. I appreciate it’. This way you are acknowledging the persons Disability without taking away their independence.

Please just be mindful of white canes, or any mobility aid for that matter.

Have a great day.  

You can find me on Threads @ViusallyImapiredPip

Benefits, what now?

Hello all,

I thought I’d drop in and post something as I am aware I haven’t posted anything since Scoliosis Awareness Month.

Since then we have had a General Election. How fun. I have taken the opportunity to write to my MP to congratulate them on staying in office. I have also used the opportunity to raise my concerns as a Disabled Constituent regarding the proposed changes to the benefits system by the previous party.

There was a lot of talk around introducing a voucher based system instead of Direct Debits into your bank. There are many issues with this such as; how do we know who will accept the vouchers? People are supposed to allow Guide Dogs into their establishments and that does not always happen. Even if it is the law.

How can we be sure that everywhere will accept these vouchers?

Also who is to say what we as Disabled people need to live our lives? Do we not get a choice when it comes to brands for what we need to purchase?

The money which we receive finds its way back into the economy when we spend it on the services we need. Such as mobility equipment, physiotherapy and sport massages (which may not be available on the NHS but go along way in helping with our pain management), cleaners, fuel for cars, heating and powering our homes. I could go on with this list but hopefully you get the idea.

Disabled people have to pay more just to be able to exist. We need to power mobility equipment, we need to keep our homes warm, we need to be able to pay for additional transport because public transport does not always exist.

I am hoping to hear back from my MP soon. I want to ensure this Government does not add to the stress and pressure which the previous government caused. Which has sadly lead to the deaths of many disabled people.

We must protect the most vulnerable in our society and that includes Disabled People.

I will probably write more on this issue soon.

Thank you,
Philippa B. 

PIP what is it for?

Hello all, 

There has still been a lot of negativity in the news regarding Disabled people and benefits. I think what is quite dangerous is that our politicians do not seem to have a clue about what our lives are like. 

An example I will focus on is Personal Independence Payment. 

A lot of politicians seemed to be going around talking about how we should make work pay. They will then proceed to discuss talking about how too many people are claiming PIP and we should change the benefits system to ensure people stop claiming these benefits and are instead allocated vouchers or grants. 

Here are a few reasons why I believe this will not work: 

Access to Work already exists on a similar basis and there is a huge backlog of claims waiting to be processed. These are benefits which enable a Disabled person to have the necessary support in place to help them access work. 

If PIP is put onto a similar scheme then those who are accessing PIP will be in a similar situation where the government is ill equipped to help process claims for items or services Disabled people use. 

But what are some of these services? 

Some Disabled people may pay for their care needs out of PIP benefit because they don’t qualify for support from the council. They may need support with anything from doing their shopping (yes Disabled people have the right the right to wander round supermarkets like everyone else) 

Not all treatments are covered under the NHS. I use PIP to pay for physio which includes a sport massage. Physiotherapy alone is not enough for my back pain. I have a curved spine and learning to stand up straight and just having better posture is not the answer. It’s a mixture of exercises, correcting my posture (within the limit of my curve) and sport massage. Without which I would be in a lot more pain than what I am with the physio  (I am currently sat in bed while I write this because my back really hurts). 

Transport is a big issue for Disabled people. Not all transport is accessible due to a number of reasons. One example maybe with bus stops and cycle lanes. As a Visually Impaired person I find it dangerous using bus stops which have cycle lanes separating them from the pavement. Therefore Disabled people like myself will opt for taxis instead of busses when these cycle lanes are in place.

How much does it cost to buy equipment as a Disabled person? 

I use a no jab long cane which enables me to navigate my surroundings while I am out and about. The jab cane means I don’t get a horrible pain in my shoulder and neck if I walk into something with my cane, because I the cain has a spring in it. These canes cost £78. 

If you wanted a standard cane you would looking at around £37. 

People will often have more than one of these items incase one breaks. I have three canes, one at work, one for eevrday and my spare. And no they are not all the no jab ones because they are expensive. 

Then there is the maintenance for your your cane. You will need to Geta new tip for it, which for some people that time can vary greatly. These tips can be around £18 for the high milage one I opt for. 

Have a look around online and see how much wheelchairs which are self propelled can cost. There not always covered by the NHS which people often think is the case. Here is one I found after only a few minutes. It is £399. 

Imagine having to pay for all the normal daily things which everyone needs and then consider these additional costs on top. 

Being Disabled costs money. They money Disabled people get does, surprise surprise, find its way back into the economy. The money Disable pound, or the purple pound is worth up to £212 billion. Imagine how much money business are missing out on because they do not always think about their Disabled shoppers. 

When you are scrolling through the news over the next few weeks as the general election looms, remember to actually think about how the Disabled Community is one you could become apart of at any moment and how would you like it if someone said ‘you should work for your benefits?’. 

Thank you for reading, 

Philippa B. 

Bus Travel

Hello all,

Lets talk accessible travel 

In the past I have written about floating bus stops and how they are not accessible to Disable people. If you want to read why then please follow this link

I wanted to write about the changes to bus travel in Bradford and how that is impacting me as a Visually Impaired Person. 

The bus station closed in January due to a collapse in an underground car park. The bus stops have since been relocated…well I don’t know where exactly as they are all dotted around the city centre. Some stops are outside the Broadway shopping centre, some are outside the town hall. I have no idea where my bus goes from or stops at. 

In this past week BBC has posted about this issue and the impact it is having on Disabled people.

The issue from my perspective as a Visually Impaired Neurodivergent person is that I cannot see where the bus stops are. If someone shows me this does not always eliminate the issue because what if the bus does not stop in the same place every time if it is busy? 

The other issue I will have is with it being busy when I set off work at rush hour what will happen if I can’t see where to join the queue to the bus? 

The other issue which I am concerned about is all the road works in Bradford at the moment. I am unsure of where I can cross the road safely. The main road in and out of town is due to close. Creating a pedestrianised area. With this road being closed I am unsure where I will get my taxi from outside the train station? I have asked the taxi drivers but they have not been informed of when the work will start on the new taxi terminus. 

There are a few issues which I have brought up here; 

The bus station is closed and has been relocated to multiple points across the city centre. 

I have no idea where my bus now runs from. 

There are road works across the city centre meaning I am not always sure where it is safe to cross. 

I have no idea when the taxi rank will move or what that relocation will look like. 

The council have not considered this impact on Disabled people. Whether we are just going into town or if we are using public transport to get to work. Our daily lives have been made even more inaccessible. This is before you even start on other issues which make travel inaccessible to us, like the floating bus stops. 

People need to consider the impact these unexpected changes have. If non Disabled people are finding it difficult to travel at the moment how are Disabled people meant to be coping? 

I will keep you updated with this ongoing issue. 

Autism Acceptance

Hello all, 

It’s April, I hope you are still aware of Autistic People… we could be anywhere….even in your house! 

Right, now you’re aware, lets talk about acceptance. Acceptance is what Autistic people want. We want Acceptance because otherwise how are we to feel included? 

One of the ways in which you can accept Autistic people is by understanding we all have different sensory needs. Autistic people can struggle with sensory overload. Sensory Overload for me can come at anytime. It is not pleasant. It can be all consuming. 

It is too bright in here, can someone just turn the big light off and we only have a lamp on? Why is the music so loud…it is unnecessary. I can’t hear what you’re saying…Did someone just brush past me? Why is my sock hurting? I’m overwhelmed by all this…no push through you’re doing great…. You’re doing what the Neurotypicals want! Go you! 

Keep going… why are there so many people here… Now my jumper feels fuzzy… Who’s playing their music too loud on their headphones? What did you say you wanted? I’m tired…slam! 

Sensory Overload feels like you are constantly having every single one of your senses engaged all at the same time and everything you are feeling is at its most maximum level. Then you feel like you have hit a brick wall. That is what it can feel like.  

When you are helping someone who is dealing with sensory overload accept what they are telling you. Help them to find a calm and relaxing space. If they need to stim to regulate themselves, let them (I’ll write something about this for next time). 

Accepting what an Autistic person is telling you is very important. It is part of you recognising their lived experiences. Autistic people’s experiences are valid, even if they are different to a Neurotypical persons experience.

Thank you for reading, 

Philippa. 

U.K. Government still silent

Hello all.

About a week on from the UK being questioned by the UN on its approach to Human Rights for Disabled People and I have not seen or heard anything from this government.

As a Disabled person it does not shock me at all how I am feeling about this. I feel let down, angry and very sad.

I listened to about 20 minutes of the conversation as I was busy with something else before hand.

All I have heard this week is the continuous barrage of hatred towards Disabled People from this government. A new policy they wish to implement is having data from the NHS shared with DWP so that Disabled people can be ‘helped’ back into work.

From my point of view this will be exactly the same situation the government has had with Personal Independence Payments. By this I mean NHS resources will be wasted on getting Disabled people into work who absolutely cannot work. Doctors do not just sign people off sick for fun.

You’re probably wondering ‘why can’t they work?’ There might be a few reasons;

They might be chronically ill

Places of work might not have access to resources such as accessible technology to allow them to work (screen readers), wheelchair access, they might not be able to go into the office as frequently as the employer might like.

They might not be able to work a full time job or have the ability to do at home working if their accommodation is not suitable due to things such as not having an office space.

There are many reasons. The way I am looking at this issue is this- make society more accessible and then everyone can thrive.

Why is it that Disabled people are being made to feel as though we are the problem? When all we want is equal access to society like everyone else.

This government and the party it represents, has continuously blamed Disabled people.

Look at how councils are now blaming the rise in SEN spending and social care for their lack of money. However when these same councils have gone to the government and said we need more funding the government have told these councils no. No. Sorry, you’ll have to find some way of making ends meet.

Which is why you have Disabled people wanting to access care in their own homes to live independently, but who are loosing access to their care agencies because the agency wasn’t awarded any funding.

It is exhausting being disabled. I look forward to seeing the report from the UN. However I very much doubt the government will truly act on it.

Thank you for reading,

Philippa B.

International Day of Persons with Disabilities

Hello all,

First of all I would like to say I am a Disabled person. That is how I describe myself. My disability is a part of me and I chose how to describe myself. 

If you, as a Disabled person chose to say person with a disability that is your choice. 

I tend to have issues with non disabled people telling me I can’t say Disabled. ‘But you are not your Disability’ I know I am not. I never said I was. What I mean is that my disabilities make up who I am and I therefore chose to use Disabled person. 

It is not for a non disabled person to tell me what terminology to use. If you have a problem with the word Disabled I suggest you really think about what it is you have a problem with. 

Anyway, it’s been Disability History Month and International Day of persons with Disabilities. 

We are often left out and marginalised by society, which leaves us excluded. We can be seen to be a burden or something that can be treated as an after thought. This should never be the case. 

We are here. We have rights and we deserve to live life. However, we cannot live life if places do not make themselves inclusive to us. 

Looking down at my feet as I'm stood in the crisp auburn autumn leaves. I have my guide cane at the side of me. I took out all the colour from my shoes and jeans. So they are black and grey. Shot on iPhone.


We need accessibility to be at the start of a conversation not just an add on. We need to feel like we are at the table having the conversation. We need to have all areas of Disability included. You cannot say you are inclusive because you have a ramp and then have doors which are not accessible. You can’t use alt text in your advertising to do a funny little joke. 

Access needs are important and we need to have them in place so that we can fully participate in society and not feel excluded. 

If you are wondering how you can make things more accessible then look up Disability charities like RNIB or Scope. They have a ton of resources which are available. 

I hope you have a great day and thank you for reading my thoughts on Disability. 

Thank you,
Phili

Disability History Month

Lets talk irony.

Hello all,

16th November marked the start of Disability History Month. Something which you may not know about. Well, now you do.

Disabled people have often been shoved to one side and ignored by society as we are not always deemed worthy. It was only in the 1990’s that Disabled People in the UK had their rights protected in law. Then in 2010 we had the Equality Act of 2010.

Ensuring Disabled people have the rights they need to be able to live their lives as fully and as freely as non Disabled People.

Lets look at what happened in the news lately, the Government wants to ensure all those who are on benefits work for their benefits. Correct me if I am wrong, but if a Disabled person is claiming out of work benefits, it is because they can not work.

I am a Disabled person who receives benefits, but I am in work. Those of us in our community who cannot work deserve a quality of life. Just because they cannot work does not mean they should be punished.

I acknowledge that befit fraud is a thing and I know that because of this small amount of people committing benefit fraud, leads to a generalisation of those who are claiming benefits.

However I am writing to defend the voices of those who are genuine and who will suffer as a direct response to these new laws.

But people can work from home now some of you may say. Yes that is an option. However, what if the employer turned around 6 months into the job and changes the terms of your contract? Saying you have to be in the office x amount of days a week. You can not make it into the office. You lose your job.

What about the lack of inclusion within society as a whole that means Disabled people are often left out? For example lack of accessible transport to get to work. Disabled people may not be able to be in work due to a variety of factors. Why is it down to the government to police a Disabled persons life?

Essentially the point of my post is that Disabled people on benefits may not all be out of work. They maybe using those benefits to work. They might not be able to work a full time job. This could be due to physical pain or mental health issues. But they are working.

What about Disabled people who do not have jobs? Well, guess what? Their health is none of your concern. If they cannot work it is between them and their Doctor. They do not have to explain themselves to you and that is OK.

Stop blaming Disabled people. Disabled people have a right to life, something which we have fought long and hard for and we are protected by the Equality Act.

Oh yes, I mentioned Irony… There was lovely post yesterday from UK Parliament celebrating Disability History Month. It is too funny, you can’t make it up.

Lets celebrate Disabled People’s history….and push these laws through from the current Government who are actively trying to kill Disabled people.

Anyway, stand up for Disabled People, we deserve a right to life.

Thank you for reading,

Philippa.