Hello all,
It is the start of Disability History Month here in the UK. The theme for this year is life and death. How fun.
It is interesting that this theme would be the topic when the government have been having conversations around Euthanasia. I’m not going to get into that here because it is a very difficult topic.
My point is this topic alongside the current conversations surrounding our benefits system seem to fit in with this theme of life and death.
When you then consider the long waiting lists within the NHS for services such as mental health support this years theme seems quite interesting.
I’m going to focus more on the life side of this years theme, lets focus on giving Disabled people a quality of life which enables us.
Disabled people have a right to exist. We have a right to life.
We should not be looking to go backwards in terms of Disabled peoples access needs. Just because someone is Disabled does not mean they are lesser than.
Disability is a group which anyone of us can join at any time. Often as people get older they will develop some form of Disability. We need to ensure all Disabled people have access to dignity at every stage of life. We, as a society, also need to start seeing mobility aids as items which empower us. Which give us independence.
One of the sections on the DHM website shows you the themes since 2010. I would urge you to go back and see what some of those themes were. I know I will be revisiting those themes to see the journey the movement has been on.
I think there is importance surrounding the topic of death, but I do not have the spoons to cover it. Just remember to respect everyones opinion on this topic and remember to ensure Disabled people are included in this conversation.
Everyone deserves respect, dignity and choice.
Thank you for reading.
Tag Archives: Visually Impaired
White Cane Awareness Day
Hello all,
Hope you are well. Some of you maybe aware that October 15th is White Cane Awareness Day. If you are aware then hurray for you. If you are not aware then well, you will be soon.
What is a white cane and who uses them?
A white cane is a mobility aid which empowers a Disabled person to have independence. This does not automatically mean that they can travel alone instantly. It takes a lot of work.
There are multiple forms of white cane. There is a symbol cane, which is held by the Visually Impaired Person to indicate that they are Visually Impaired and may need more time and space, or might require assistance.
The other cane is a long cane. This cane is used for the same reasons as above, but the person using it is using it to navigate their surroundings. It enables them to gain tactile feedback.
You may have seen some canes come with red and white stripes. These indicate the user is Deaf Blind.
I used to use a symbol cane but now I use a long cane. I find it works better for me as I have little to know peripheral vision. As well as many other things.

Do I need my cane even if I am with someone?
Yes. My cane is something I use even if I am with someone. It allows me to let people know I need space and additional time. As well as it helping me to navigate my surroundings.
Why do we need long cane awareness day?
We need it because of the amount of people who chose to ignore us. There are people who will ignore our cane and step over it. They will push in front us on trains and rush to the disabled seating. They will then giggle about their ignorance. FYI. Not all long can users are completely Blind. We have limited vision.
The other day I was getting off the train and someone was getting on the train and chose to step right in front of me. I am not moving. I have had it before where people will refuse to move. Why? If you think you’re being clever…you’re not. Please refer back to those who think it is ok to rush to the Disabled seating and giggle.
We need White Cane Awareness days because of peoples lack of knowledge and more importantly peoples lack of acceptance.
You may have the gift of sight. Which is wonderful for you. Some of us do not. If people had to spend even half a day in the shoes of a Visually Impaired or Blind person they would soon change their attitude. This is also not the same as wearing a blind fold for a short activity as it does not accurately represent our day to day struggles.
Our canes give us mobility. They help us to navigate the world in a safer manner. It allows those around us to ask if we need help. I often hear people ask ‘I don’t know if I should ask if you need help?’ I always respond with ‘I always appreciate when people ask because I might not be in a position to ask for help. It is always better to ask than to ignore. I appreciate it’. This way you are acknowledging the persons Disability without taking away their independence.
Please just be mindful of white canes, or any mobility aid for that matter.
Have a great day.
You can find me on Threads @ViusallyImapiredPip
Books in 2024
Hello all,
It is that time again where I tell you about all the books I read in the last year. I listened to six books. In 2023 I listened to seven books. So really I didn’t do to bad in comparison.
I do wish I had listened to more books though. We’ll see how we get on in 2025… 2025!
Cher
By: Cher
I saw this book advertised in a shop and had to download it on my Amazon subscription. The book is absolutely amazing. Cher talks so openly about everything and there is so much that made me laugh and made me feel quite sad. If you love Cher then you need to listen to this book. It is part one of two and I cannot wait for part two.
This is the last book I read last year I got through it very quickly. I think it took less than two weeks. I just couldn’t stop listening to it.
Sonny Boy
By: Al Pacino
When I was in London I saw this book advertised on the tube and I added it straight to my collection. Much like Cher’s Book it made laugh and cry.
I loved that he read the book it was a brilliant listen. I think I listened to it very quickly. Most people I think don’t realise how much effort actors and singers etc have to put into their craft. Al Pacino really lays out all of the things he had to do to make his dream a reality.
The Third Gilmore Girl
By: Kelly Bishop
I listened to this book because I am a fan of Gilmore Girls. I absolutely love Kellys character Emily. This book as with the others made me laugh and cry. I think I loved it so much because she was so determined to get what she wanted and wouldn’t let anyone tell her no.
The Twat Files
By: Dawn French
I love Dawn French. I love anything French and Saunders. What was great about this book was that she was saying everyone makes mistakes and makes a fool of themselves. Thats just human.
Berserker!
By: Adrian Edmondson
His book was one I saw advertised and had to add to my list to read. I enjoyed his book because he talks a lot about the Comic Strip and how a lot of the people involved had a massive part to play in a lot of the comedy I have listed too. He only ever talked about himself and never delved into his personal relationship or marriage with Jennifer Saunders which is wonderful because it shows his respect for her and their marriage. Plus I have read her book it was quite difficult at times.
I found the parts where he wrote about his partnership and friendship with Rik Mayall to be a difficult listen because of what happened. You can tell how much he cared for him.
Plus he’s from Yorkshire, which is grand.
Making It So
By: Patrick Stewart
Patrick Stewart is a great Yorkshireman which is enough reason to buy the book. What I loved was his dedication to theatre. He has played so many great roles which I got to listen to as part of his book. He truly is a national treasure. I just loved listening to his book. Listening to the parts where he talks about growing up in Yorkshire and how someone saw something in him which helped him to push himself to do more and really work on his dream was wonderful.
I really do enjoy audiobooks, especially when the person who is reading it is the person who wrote it.
I do however wish I could access physical books. I miss sitting down with a physical book and just reading. With a nice cup of tea.
But we have audiobooks so I can use those. I can listen to them anytime I want. Its good to listen to them while you’re doing other things.
What books have you listened to this last year?
I am on Threads @VisuallyImpairedPip
Taxis
Hello all,
This year there have been a lot of major changes in the layout of the city where I live. One of these changes has been the taxi pick and drop off near the bus and train station.
In order for me to get a taxi I now have to walk out of the station down a pathway and turn right onto a main road. The taxis are parked in a line up the hill. There is not really a pathway for you to walk up and get into the taxi. It is just a small curb designed to stop cars going into the wall.
The other day I was getting my taxi and found that the taxis were facing up the hill instead of down. This means the passenger side is now no longer on the ‘curb’ side.
I was confused at first as it was not what I was expecting. These taxis are council run and there were no emails sent out in the news letter regarding these changes. They did mention a change to other taxi pick up points but not these.
This now means I need to walk up the tiny ‘path’ which there is no room to swipe your cane what so ever.
The image below is from when the taxis were facing down the road.

You can see on the left there are a row of taxis with the ‘curb’ I am referring too. You will also notice there are busses on the side other of the road. Pedestrians are now expected to walk up this narrow ‘curb’ and out onto a road which is used by busses on the other side. It is also used by vehicles coming up that road which have just dropped people off.
The bottom road onto this road looks like the image below. This is a very narrow road.

A narrow street with parking bays on the left hand side.
I have written an email to enquire bout this situation asking who I can email directly.
This situation is not safe even for people who can see.
Yesterday the taxi man at the back of the queue got out and helped me to get to the taxi at the front. He asked me if I needed help in getting a taxi. He gave me his arm and guided me up the the hill and helped me into the taxi. The taxis are always very helpful and understand my frustration at this new situation. They assured me one of them would see me waiting and walk me up to the front taxi so I can get in safely.
But it does still mean we need to walk in the road.
It takes away a level of independence from me where I can get into a taxi and get home.
I am understandably not happy with the council about this and it is no way the fault of the people who drive the taxis. They are doing what they have been told to do. They have always been amazing and very helpful. I just wish the council understood the impact this is having on Visually Impaired and Blind People.
Since writing this we have had an update from the council where they have said the train and bus station is re opening January 5th. Which means those busses will be moving back into the Interchange. However until then I need to put up with this situation.
I am really hoping when all of this work is done our city will look amazing and people will enjoy the new renovations. I think it will look lovely.
Merry Christmas to you,
Thank you for reading,
Philippa B.
Scoliosis and the cold
Hello again,
The weather is getting colder which means my back is hurting more and more. It is not just my back which hurts with the cold, but my joints ache too.
I have to keep going for my sport massages. These are really helpful because it helps to reduce the tightness in my muscles. This means I can move around a bit easier and feel a little less pain. I then have to keep doing my physio exercises to help keep the muscles and joints as usable as possible.
However, this is just a continuous cycle of sport massages, physio exercises and pain relief.
Due to my curved spine I will always be in some level of pain. It is just about how I manage it. There is no full solution to Scoliosis, which is what the condition is called when you have a curved spine. Even if you have the surgery to correct your spine you can still have to deal with the pain.
Currently I have pain in my right shoulder and neck which then runs all the way down the right hand side of my body. I am trying to keep warm today as it is due to snow heavily later on. The temperature is currently 1.
I am not a fan of the cold due to the high levels of pain I have to put up with. I wish people could understand a little more about the constant pain people with Chronic pain have to deal with.
I am going to go do some other things and get on with my day. Stay warm and safe.
Thank you for reading,
Philippa.
Motion sensor
Hello all,
As the evenings and mornings are getting darker I thought it would be a good idea for me to buy one of those motion sensor lights.
They will actually come in handy all year round.
I bought this one from the RNIB, click here. It is motion activated, it can double up as a rechargeable torch and it can also be left on all the time if the user prefers. I don’t think we will use that setting though.
The first one I bought I put at the bottom of the steps. It turns on when I reach the bottom step which is ok. It also turns on when you’re about 4 feet away in the other direction.
It is quite bright which I normally dislike. However because it turns off after a few moments and only lights up the floor area that is OK.
I then decided to buy one for the kitchen to make it easier to find one of the light switches.
They have been in use for a few weeks now I am really glad I bought them. They make it a lot easier and safer to navigate when it is dark.
One of the best things about it is it automatically turns on if you have a power cut. Which is very useful. If you are visually impaired I would recommend buying something like this. Along side a few battery powered torches which you can place around your home. It is much safer than a candle.
No I am not being paid for this post. I just really liked my purchases.
Let me know what other safety tips you have for navigating in the dark.
Thank you for reading,
Philippa B.
PIP what is it for?
Hello all,
There has still been a lot of negativity in the news regarding Disabled people and benefits. I think what is quite dangerous is that our politicians do not seem to have a clue about what our lives are like.
An example I will focus on is Personal Independence Payment.
A lot of politicians seemed to be going around talking about how we should make work pay. They will then proceed to discuss talking about how too many people are claiming PIP and we should change the benefits system to ensure people stop claiming these benefits and are instead allocated vouchers or grants.
Here are a few reasons why I believe this will not work:
Access to Work already exists on a similar basis and there is a huge backlog of claims waiting to be processed. These are benefits which enable a Disabled person to have the necessary support in place to help them access work.
If PIP is put onto a similar scheme then those who are accessing PIP will be in a similar situation where the government is ill equipped to help process claims for items or services Disabled people use.
But what are some of these services?
Some Disabled people may pay for their care needs out of PIP benefit because they don’t qualify for support from the council. They may need support with anything from doing their shopping (yes Disabled people have the right the right to wander round supermarkets like everyone else)
Not all treatments are covered under the NHS. I use PIP to pay for physio which includes a sport massage. Physiotherapy alone is not enough for my back pain. I have a curved spine and learning to stand up straight and just having better posture is not the answer. It’s a mixture of exercises, correcting my posture (within the limit of my curve) and sport massage. Without which I would be in a lot more pain than what I am with the physio (I am currently sat in bed while I write this because my back really hurts).
Transport is a big issue for Disabled people. Not all transport is accessible due to a number of reasons. One example maybe with bus stops and cycle lanes. As a Visually Impaired person I find it dangerous using bus stops which have cycle lanes separating them from the pavement. Therefore Disabled people like myself will opt for taxis instead of busses when these cycle lanes are in place.
How much does it cost to buy equipment as a Disabled person?
I use a no jab long cane which enables me to navigate my surroundings while I am out and about. The jab cane means I don’t get a horrible pain in my shoulder and neck if I walk into something with my cane, because I the cain has a spring in it. These canes cost £78.
If you wanted a standard cane you would looking at around £37.
People will often have more than one of these items incase one breaks. I have three canes, one at work, one for eevrday and my spare. And no they are not all the no jab ones because they are expensive.
Then there is the maintenance for your your cane. You will need to Geta new tip for it, which for some people that time can vary greatly. These tips can be around £18 for the high milage one I opt for.
Have a look around online and see how much wheelchairs which are self propelled can cost. There not always covered by the NHS which people often think is the case. Here is one I found after only a few minutes. It is £399.
Imagine having to pay for all the normal daily things which everyone needs and then consider these additional costs on top.
Being Disabled costs money. They money Disabled people get does, surprise surprise, find its way back into the economy. The money Disable pound, or the purple pound is worth up to £212 billion. Imagine how much money business are missing out on because they do not always think about their Disabled shoppers.
When you are scrolling through the news over the next few weeks as the general election looms, remember to actually think about how the Disabled Community is one you could become apart of at any moment and how would you like it if someone said ‘you should work for your benefits?’.
Thank you for reading,
Philippa B.
Negative Narratives
Hello allo,
The government has really ramped up it’s messages about Disabled people hasn’t it?
There has been a lot of negative narratives and harmful stereotyping surrounding our community. But where to begin…?
I think I’ll start with the blatant lack of understanding. The government does not seem to not understand the benefits system… They do not seem to understand that Personal Independence Payment or PIP, can claimed whether the person is in work or out of work.
Furthermore it appears as though people do not fully understand the word ‘independence’. The payment exists to support Disabled people with extra costs of living with a Disability.
You also do not automatically get the benefit because you are diagnosed with ADHD, or a Visual Impairment etc.
It is a horrible process which a Disabled Person needs to go through. They ave to fill out a really long form where they tell the DWP how their Disability affects them. Once they have filled in this form, and provided medical evidence they then have to go to an assessment centre or have someone come to their home and ask them really invasive questions about their daily routine, washing habits, eating habits, whether or not they have job or friends… then the Disabled person is given a score and this score then adds up to how many points they get. This scoring system then decides if they are allowed any benefits which could help them to cover the extra costs which come with being disabled.
More often than not the person will fail this assessment and will then have the option to appeal the decision. Again the decision could come back as a ‘no sorry your visually impaired and can’t see very well, you don’t ever leave the house alone on new or unfamiliar journeys, but you don’t qualify’.
Then the Disabled Person has the option to essentially take the government to court. This is called a tribunal. You have to go and sit in front of a Judge and Doctors and make the case that you are Disabled and just want some help with the extra cost of living and keeping yourself alive.
The tribunal process is separate to the DWP and it is independent. It does not have any government backed companies behind it, like ATOS trying to save the government money.
A majority of the time Disabled People win these tribunals because the people at them are medical professionals and people who practice law. Therefore they understand the person in front of them and their needs and what they are entitled too.
Do you honestly believe it is an easy process putting yourself through all of that? So many Disabled do not have the energy or support to go trough it. Quite often Disabled people might end up taking their own lives because they have run out of energy and money to support themselves because whilst they are fighting all of this they have no benefits because they have been stopped.
Whilst I am writing this I am very much aware of the level of pain my right side is in due to my Scoliosis.
Do not judge Disabled People. We have just as much as right to exist as anyone else. Our lives have meaning.
If you are reading this and were not aware of how these new policies will impact Disabled People please contact your MP and express to them your concerns. Help Disabled People to be able to just have the right live.
Thank you,
Philippa B.
U.K. Government still silent
Hello all.
About a week on from the UK being questioned by the UN on its approach to Human Rights for Disabled People and I have not seen or heard anything from this government.
As a Disabled person it does not shock me at all how I am feeling about this. I feel let down, angry and very sad.
I listened to about 20 minutes of the conversation as I was busy with something else before hand.
All I have heard this week is the continuous barrage of hatred towards Disabled People from this government. A new policy they wish to implement is having data from the NHS shared with DWP so that Disabled people can be ‘helped’ back into work.
From my point of view this will be exactly the same situation the government has had with Personal Independence Payments. By this I mean NHS resources will be wasted on getting Disabled people into work who absolutely cannot work. Doctors do not just sign people off sick for fun.
You’re probably wondering ‘why can’t they work?’ There might be a few reasons;
They might be chronically ill
Places of work might not have access to resources such as accessible technology to allow them to work (screen readers), wheelchair access, they might not be able to go into the office as frequently as the employer might like.
They might not be able to work a full time job or have the ability to do at home working if their accommodation is not suitable due to things such as not having an office space.
There are many reasons. The way I am looking at this issue is this- make society more accessible and then everyone can thrive.
Why is it that Disabled people are being made to feel as though we are the problem? When all we want is equal access to society like everyone else.
This government and the party it represents, has continuously blamed Disabled people.
Look at how councils are now blaming the rise in SEN spending and social care for their lack of money. However when these same councils have gone to the government and said we need more funding the government have told these councils no. No. Sorry, you’ll have to find some way of making ends meet.
Which is why you have Disabled people wanting to access care in their own homes to live independently, but who are loosing access to their care agencies because the agency wasn’t awarded any funding.
It is exhausting being disabled. I look forward to seeing the report from the UN. However I very much doubt the government will truly act on it.
Thank you for reading,
Philippa B.
Lunch out
Hello all,
Last week I went out with a friend for a nice catch up over some brunch.
I had a full English breakfast with hash browns which was delicious.
Afterwards we went to Lush. I did not buy anything because I have a lot of bath stuff already.
It is always nice to have something to look forward to and something to remember during your week which could cheer you up.
I’m trying to focus on positive thoughts and the positive things happening around me.
It can feel like there is a lot of negativity in the world and we need to focus on the good things around us. In the hope that more positive things will come.
Going out with friend’s is one of the positives I can focus on. Especially if we are going somewhere which will be nice and quiet. I struggle with sensory overload and always try planning with this in mind.
When I go out I make sure to carry my AirPods as they are noise cancelling and they help to reduce the volume of everything going on around me on the train.
If– the place we went to for brunch was nice and quiet. So sensory overload was not an issue. Except when someone was making a smoothie, but that’s it.
I enjoyed the food, I gave my freind the mushroom because I do not like them. The hash browns were amazing.
If you have not tried If then give them a go. The menu is pretty big and we are going to go back to try the pancakes.
What kind of things do you have to look forward to to cheer you up?
Thanks for reading,
Philippa.